This workshop will include speakers with a range of experiences of different data types (qualitative and quantitative), sharing best practice and guidance around topics such as compliance, anonymisation, and can sensitive data be open?
Aims
The aims are to share best practices around the use of sensitive data in research and discuss the difficulties and limitations of using such data. We are also trying to increase the visibility of data stewardship work done and roles on research projects and help them bring the community together.
The 5 Safes – How UK Data Service makes sensitive (and other) data available for research
Deputy Director of the UK Data Service
Description: This session will outline how the UK Data Service has established polices and process to enable large scale re-use of data following the principle of ‘as open as possible, as closed as necessary and focussing on the use of the 5-safes, particularly in the context of provision of data via the UKDS SecureLab Trusted Research Environment (TRE) service as well as providing some practical guidance on how to the 5-safes could apply to your data.
Biography: John is the Deputy Director of the UK Data Service, based in the UK Data Archive, the UK's largest collection of social, economic, and population data, where he oversees the operational delivery of the Service. Over the last decade, John has worked at the University of Essex, in various roles for the Archive and within the Research Enterprise Office on large knowledge exchange and impact programmes. John joined the University of Essex in 2014, bringing with him over a decade's worth of experience from data research positions with a focus on police force and local authority data.
Title TBC
Research Fellow/Data Steward, University of Manchester
Biography: Saskia is an experienced research fellow and data steward, SSI fellow, a previous University of Manchester Open Research Fellow, and an ELIXIR-UK FAIR Data Stewardship Fellow working in the Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatological Sciences at the University of Manchester. Saskia’s work focuses on data stewardship, research data management, and open science.
Saskia is also the co-lead of two national working groups: the ELIXIR-UK Human Data Community and the NIHR Musculoskeletal Translational Research Collaboration Real-World Data Harmonisation working group.
Data protection and Generative AI
Head of Data Protection & Legal Services, University of Sheffield
Biography: Luke is Head of Data Protection & Legal Services at the University of Sheffield, where he is the institute's Data Protection Officer and has oversight on all data that falls under the remit of the Data Protection Act and GDPR, including both internal and research data, amongst other responsibilities. Luke has previously held the same position in a number of large organisations, including the University of Hull and Lincolnshire Police, amassing almost two decades of experience around sensitive data.
Ship Shape and Bristol Fashion: Lessons learnt through 10 years of sensitive data release
Research Data Librarian, University of Bristol
Description: This paper presents lessons learned from ten years of supporting sensitive data sharing at the University of Bristol. It will set out our definition of sensitive data, detail deposit checking for supporting data, including work on consistently wording consent, working with legacy data, setting up our Disclosure Risk Service, and the function of Bristol's Data Access Committee (DAC) - established in accordance with the recommendations of the EAGDA. We also discuss challenges in the research process and administration of this service, along with practical considerations for integrating such a model at other institutions.
Biography: Kirsty Merrett is a Research Data Librarian at the University of Bristol. She advises researchers how to manage, store, and share research data, and helps them publish open and controlled access data at the University of Bristol's data repository, data.bris. She has authored publications on controlled data access, designing institutional policy, and embedding RDM services in institutions, and is a frequent speaker at international conferences. She also works with the UK Reproducibility Network's Open Research Programme, where she designs and delivers Train the Trainer workshops on Research Data and Sensitive Data to UK HEIs. Kirsty is currently working with colleagues at the Irish Data Stewardship Network, Sonraí, to establish a curriculum for Microcredentials for Data Stewards.
Ethical Data Sharing in the Digital Archives Space—An Enterprise Perspective
Digital Preservation Training Officer, University of Southampton
Description: In the cultural heritage and archival context, professionals often face the challenge of managing, digitizing, and providing access to collections with ties to violent colonial legacies. Collections data of this nature is sensitive—its documentation and proliferation must be undertaken with a great deal of care. This talk delves into a number of the conceptual and practical frameworks that Digital Preservation Southampton, an enterprise unit dedicated to working with organisations in the sector to promote the long-term sustainability of digital assets, has encountered in its associated projects. Attendees will meditate on the balance between openness and sovereignty that must be sought out in the case of data that pertains to marginalised communities.
Biography: Laurisa Sastoque (she/her) is a Digital Preservation Training Officer at Digital Preservation Southampton, an enterprise unit of Southampton Digital Humanities. DPS seeks to support professionals in the cultural heritage sector by offering training, consulting, data recovery opportunities, and upholding the importance of digital skills in the GLAM sector. Laurisa has led successful workshops such as Mastering Metadata for Digital Preservation and Foundations of Digital Preservation. Laurisa is also a PhD student in Latin American studies at the University of Cambridge as a Margaret Anstee Centre for Global Studies scholar, where she researches spatial narratives and Latin American diasporas. She is originally from Bogotá, Colombia. In her spare time, Laurisa enjoys travelling, trying out new coffee shops, and fantasizing about the dog she will (one day) adopt.
Title TBC
Deputy Director of DARE UK
Biography: Fergus has been Deputy Director of DARE UK, part of HDR UK, since 2021 where he has been responsible for the strategic development and delivery of the programme since its inception. Fergus’s background is in automotive, where he held several roles that straddled the boundaries between business and technology, encompassing product management, digital marketing, strategic project management, and regional service hubs. He has worked in several international business geographies, including South Korea, Southeast Asia and Southern Africa. He has a degree in Mechanical Engineering from the University of Pretoria, South Africa.